This year we’re golfing to support Lily Dauksza & her family in their fight against brain cancer.
Lily is two and a half years old. Her whole life, Lily has been a very bright and active little girl with a kind and loving heart. Lily had an active social life and enjoyed going to pre-school at St Paul’s Christian Day School, and doing gymnastics at Tumble Bee! But more than anything, Lily loves her little brother Daniel. She enjoys chasing him around and giving him big hugs and kisses.
In November Lily had her first hospital stay, where a CT scan and an extensive MRI showed she had a brain tumor. A biopsy confirmed her diagnosis, Diffuse Intrinsic Pontine Glioma (DIPG), a rare and aggressive brain cancer. Unfortunately due to its location in the center of her brain stem, (which controls all the body’s major functions such as breathing, your heart beating, etc.) the tumor is inoperable. The gravity of this rare and aggressive pediatric brain cancer was compounded by the devastating news that Lily has been given just 6-9 months to live.
Since her diagnosis, Lily has endured 30 rounds of radiation therapy, receiving treatment 5 days a week. Lily is currently undergoing chemo-style immunotherapy treatments, alongside her other medication regimen.
Unfortunately, the radiation and immunotherapies are non-curative. However, they can help stave off the growth of her tumor and give us more time with our beautiful girl. As a family we are doing everything we can to fight for Lily and ensure that she has quality time for as long as possible. We are working hard everyday to make lasting memories as a family and to provide Lily with as many fun and joyful moments as possible while she is still strong and happy.
The financial burden of medical treatments, experimental therapies, and end-of-life care is overwhelming. Your generosity and kindness will make a meaningful difference to alleviate this burden and ensure that Lily receives the best possible care during her remaining time with us.
Thank you for opening your hearts to Lily’s story and for standing with us as we fight against DIPG, refusing to accept its grim prognosis.
With heartfelt gratitude,
The Dauksza Family
CONTACT US
- 845-947-1100
- phillipstotsgolfouting@gmail.com