Leilany is a bright, joyful, and determined seven-year-old from Rockland County who lives each day with Spastic Paraplegia Type 4 (SPG4)—a rare genetic disorder that affects her ability to walk, requiring her to use a wheelchair.

Diagnosed at just 18 months old, Leilany has already undergone major surgeries and therapies, and continues to bravely face the daily challenges of her condition.

Her world is filled with love from her devoted parents, Yohanny and Danny, who do everything they can to make her life as comfortable and full of joy as possible. From lifting her into the car to helping her bathe, they do it all with endless patience and care. Leilany finds comfort in her big brother Darnell, who always knows how to make her smile, and in the teachers, friends, and community that have embraced her along the way.

As she grows, the physical demands and costs of her care also grow, placing significant strain on her family. Our support can help alleviate some of these daily burdens and provide the resources that make a real difference in her quality of life.